Dr. Linda Nguyen
Positions
Assistant Professor
Faculty of Social Work, Calgary Campus
Azrieli Accelerator Assistant Professorship in Youth, Sibling, and Community Engaged Research
Azrieli Accelerator
Child Health and Wellness Researcher
Alberta Children's Hospital Research Institute, Owerko Centre
Contact information
Background
Educational Background
BHSc Honours Health Sciences Program, McMaster University, 2015
MSc Rehabilitation Science, McMaster University, 2017
PhD Rehabilitation Science, McMaster University, 2022
Biography
Dr. Linda Nguyen is an Azrieli Accelerator Assistant Professor in Youth, Sibling, and Community Engaged Research in the Faculty of Social Work at the University of Calgary.
She completed her Bachelors in the Honours Health Sciences Program and Child Health Specialization at McMaster University. Her research interest in goal-setting for children and adolescents with disabilities in family-centred services led her to pursue graduate studies. She completed her Masters in the School of Rehabilitation Science at McMaster University, and her Masters thesis was focused on understanding parents’ perspectives and experience with botulinum toxin treatment for non-ambulatory children and adolescents with cerebral palsy. She aimed to continue to understand the perspectives of families of children and youth with disabilities by completing her PhD studies. Her PhD studies focused on understanding the experiences of siblings of youth with a disability during the transition to adulthood, including the transition from pediatric to adult health care.
She continued to expand her knowledge about the engagement of siblings in research and share her research experiences by completing an internship in The Netherlands. She completed her postdoctoral fellowship in the School of Physical and Occupational Therapy (SPOT) at McGill University. Throughout her research, she engages with collaborators nationally and internationally.
Research
Areas of Research
Participation in university strategic initiatives
Projects
Her current research projects focuses on co-developing programs to support youth with disabilities and siblings during the transition to adulthood, as well as mobilizing knowledge into research, practice, and policies including the United Nations Convention on the Rights of Persons with Disabilities (CRPD) and Convention on the Rights of the Child (CRC). She engages with interested parties including youth, siblings, families, healthcare professionals, civil societies, and policy makers throughout her projects.
Awards
- Graduate Fellowship in Patient-Oriented Research, CHILD-BRIGHT Network. 2020
- Excellence in Rehabilitation Science Research Award, McMaster University. 2022
- Patient-Oriented Research Awards - Transition to Leadership Stream - Phase 1, Canadian Institutes of Health Research. 2020
- Patient-Oriented Research Awards - Transition to Leadership Stream - Phase 2, Canadian Institutes of Health Research. 2024
Publications
- Filling in the gap”: A qualitative case study about identity formation of siblings of youth with a neurodisability. Nguyen L, Jack SM, Davis H, Bellefeuille S, Arafeh D, Di Rezze B, Ketelaar M, and Gorter JW. Journal of Adolescence. (2024)
- Being a sibling of a youth with a neurodisability: A qualitative case study about the roles and responsibilities during the transition to adulthood. Nguyen L, Jack SM, Davis H, Bellefeuille S, Arafeh D, Di Rezze B, Ketelaar M, and Gorter JW. Child: Care, Health and Development. (2024)
- Navigating meaningful engagement: Lessons from partnering with youth and families in brain-based disability research. Nguyen L, Pozniak K, Strohm S, Havens J, Dawe-McCord C, Thomson D, Putterman C, Arafeh D, Galuppi B, Via-Dufresne Ley A, Doucet S, Amaria K, Kovacs AH, Marelli A, Rozenblum R, Gorter JW on behalf of the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Trial Study Group. Research Involvement and Engagement. (2024)
- A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada. Nguyen L, Dawe-McCord C, Frost M, Arafeh M, Chambers K, Arafeh D, Pozniak K, Thomson D, Mosel J, Cardoso R, Galuppi B, Strohm S, Via-Dufresne Ley A, Cassidy C, McCauley D, Doucet S, Alazem H, Fournier A, Marelli A, Gorter JW on behalf of the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Trial Study Group. Frontiers in Rehabilitation Sciences – Disability, Rehabilitation, and Inclusion; Research Topic, International Day of Persons with Disabilities – Children’s Disabilities. (2023)
- Youth engagement in research: Exploring training needs of youth with neurodevelopmental disabilities. Yimeng Dong S, Nguyen L, Cross A, Doherty-Kirby A, Geboers J, McCauley D, Soper AK, St. Dennis A, Steeves D, Trehan N, and Gorter JW. Research Involvement and Engagement. (2023)
- Programs to prepare siblings for future roles to support their sibling with a neurodisability: A scoping review. Nguyen L, Bootsma J, Ketelaar M, Di Rezze B, Jack SM, and Gorter JW. Current Developmental Disorders Reports. (2023)
- Exploring the “how” in research partnership with young partners by experience: Lessons learned in six projects from Canada, the Netherlands, and the United Kingdom. Nguyen L, van Oort B, Davis H, van der Meulen E, Dawe-McCord C, Franklin A, Gorter JW, Morris C, and Ketelaar M. Research Involvement and Engagement. (2022)
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